Joanna Allan, Working Group Coordinator at the UK Consortium on AIDS and International Development, blogs from the ICASA Ethiopia conference


Energy, colour and a strong sense of joyful celebration were injected into the opening ceremony of ICASA 2011 thanks to the dramatic and musical dancing displays of our Ethiopian hosts.  Civil society, current and former heads of state, people living with HIV, NGOs, UN agencies and renowned scientists joined together in Millennium Hall to enjoy the energetic Ethiopian dancing and its unique focus on the seductive and frenzied gyration of the shoulders.  Yet, in the views of many conference participants, the vigor and urgency of this opening performance was sadly not reflected in the plenaries, sessions and satellites over the ensuing days.

Several Consortium members were represented at the 11th International Conference on AIDS and STIs in Africa and had the opportunity to share good practice and knowledge with colleagues from all over Africa. Yet, when I enquired as to their overall impressions of the conference, many felt that key aspects of the current HIV/AIDS context were lacking. “Where is harm reduction?”, “where is palliative care?”, conference delegates asked. One woman with a disability said of the conference; “our non-inclusion in the whole process is reflected at a higher level as programmes are not adapted to suit the specific needs of people with disabilities.”  My personal rhetorical question was “where are the key populations?” Upon arriving in Addis, I picked up an English-language Ethiopian newspaper to read whilst experiencing my first taste of the famed local coffee. The front-page story focused on the ICASA conference, which it described as “about men who have sex with men”, and went on to state that 97% of Ethiopians believe that homosexuals should be “rejected by society”. This, coupled with derogatory comments about MSM made by fellow conference delegates, once again highlighted for me the need for an urgent focus on tackling discrimination against, and stigmatization of, key populations. Therefore, the lack of visibility of these groups at ICASA was highly regrettable and of strong concern.

A possible exception to the lack of inclusiveness and energy characterized by the conference was, in my view, the Community Village. This was a platform for NGOs and community-based projects to showcase their programmes, services and best practices, and was by far the most dynamic space within ICASA.  Every day, visitors to the village were treated to a packed schedule of dance and music performance highlighting arts and traditions from across Africa, as well as traditional coffee ceremonies, henna tattoos, chats with life-sized condoms, fashion shows of clothing designed and made by women living with HIV, the chance to participate in “graffiti walls” hosted by networks of young people affected by HIV and endless interactive workshops led by the various booths. People with disabilities were literally centre-stage giving artistic performances and dance and music interpretations, sexual minorities had the space to challenge discrimination and women living with HIV promoted dialogue for African action on their rights, dignity, leadership and safety. It truly was a space for sharing, learning, thinking and action.

The Community Village was my “home” for the week, as the Caregivers Action Network (CAN) had a booth within it. It was a pleasure to host this space along with our Care and Support Working Group Chairs and a network of African caregivers. We held workshops with caregivers, hospices, UNICEF, the World Bank, the World Food Programme and several other organisations working on care and support. The resounding message of the CAN booth was reflected in the question that one visitor asked: “Could someone tell me where the HIV response would be without communities and community caregivers? The funding may go, the policies may change, NGOs may leave but the communities will remain!”

The Community Village was also the location for a larger event on the Code of Good Practice for NGOs responding to HIV/AIDS, which I hosted in partnership with UNAIDS and the International AIDS Society. There was a consensus that the Code of Good Practice, in these times of reduced commitments from donors and engagement from governments, is more relevant than ever, and there was much enthusiasm from participants in supporting it to move forward. Yet there is much to do to reinvigorate the Code. Self-assessment checklists require updating, a global advisory group must be formed and we strongly need a robust communications strategy. We hope that our members will galvanise around these tasks and take this opportunity to showcase their expertise on an international level!

Finally, the last day of the conference arrived. In stark contrast to its opening, ICASA closed with a somber, silent march, reflecting the mood of disenchantment created by recent news of the Global Fund crisis. One hundred activists marched through the plenary during the Global Fund’s Deputy Director Debrework Zewdie’s speech carrying signs demanding that African governments and donors take ownership of the AIDS epidemic, and asking international donors, “where is the money?”. Like many other questions asked during the onslaught of this conference, this question as yet remains unanswered. Perhaps global leaders, governments and donors need a few shots of Ethiopian espresso.

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Johnson & Johnson, what will your Christmas Present to the world be…?

Student Stop AIDS campaigners staged a snowy protest today outside Johnson & Johnson, maker of the famous ‘no more tears’ baby products, demanding to know whether their Christmas present to the world would include entering negotiations to join the Patent Pool, an initiative which will provide life-saving HIV medicines to the nine million people still waiting for treatment around the world.

 

Johnson & Johnson, who are likely to be making their decision on the Patent Pool soon, are one of the few pharmaceutical giants not yet in negotiations over joining. They make a number of vital HIV drugs most of which currently cost thousands of pounds a year in many developing countries, pricing them out of the reach of the poor people who need them.

 

Their decision is being eagerly anticipated by Student Stop AIDS Campaigners across theUKwho last week delivered a petition with 24,414 signatures from members of the public wanting them to join.  Campaigners say that a positive decision would be widely celebrated, but a refusal to negotiate would be met with increased pressure and new tactics.

 

Student Stop AIDS Campaign coordinator Lotti Rutter said, “Johnson & Johnson’s decision is being watched carefully by campaigners across the world. A negative decision would fly in the face of their public image as a family-friendly company. We hope they make the right choice, but a refusal to join talks to enter the Patent Pool would mean they are closing the door on an initiative which could help countless parents and babies access life-saving HIV drugs. If they say no, we definitely won’t be going away.”

 

The Patent Pool, which is supported by theUKand US governments, is an innovative approach to tackling the barriers to affordable HIV medicines, creating a one-stop-shop which would make it easier for generic manufacturers to produce affordable, effective drugs. Established by UNITAID in September 2010, it has already agreed licences with pharmaceutical giant,Gilead, and is currently in negotiations with five other pharmaceutical companies including GlaxoSmithKline to reach agreement on their participation.

 

Johnson & Johnson’s refusal so far to enter talks has particularly angered campaigners as the National Institutes of Health, theUSgovernment’s medical research arm, has already reached agreement with the Patent Pool for the rights they own on Darunavir – a promising new HIV drug that could be particularly useful for people living with HIV whose current medication is failing. Johnson & Johnson own the rest of the patent rights, so by turning their backs on the Patent Pool they are effectively blocking access to Darunavir for those who may die without it.

 

Rachel Edwards, a member of the Student Stop AIDS Campaign said, “One of the problems in the past has been companies making small, tokenistic efforts to ease access to treatment. The Medicines Patent Pool is a solution which aims to be industry-wide, matching the scale of the challenge. If J&J’s decision is negative we won’t stop campaigning – with so many millions waiting for HIV treatment we will keep pressuring J&J to join until they change their mind.”

 

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24,414 people call on Johnson & Johnson to join the pool

 

AIDS campaigners presented 24,414 signed action cards to baby product manufacture Johnson and Johnson on Wednesday, urging them to join the Medicine Patent Pool.

 

The company, which produces vital HIV drugs, has in the past refused to join the pool, denying millions of people access to life-saving treatments. But campaigners hope that the commitment of thousands to the patent pool campaign will push the company into joining.

 

Johnson and Johnson produces several HIV drugs and partly owns the rights to Darunavir, an expensive medicine which is not widely available. Generic access to the drug could help thousands of people living with HIV whose current medication is failing them. Student Stop AIDS Campaigners, have for the past year, been urging them to join the Medicine Patent pool, where companies hand over their patent rights and allow generic companies to make and sell their drugs at affordable prices.

 

Student Stop AIDS Campaign coordinator,Lotti Ruttersaid: “Johnson and Johnson refusing the join the patent pool conflicts with their public image and their child friendly “No More Tears” slogan. They are turning their backs on an initiative which could help millions of children and adults gain access to vital HIV treatment.”

 

Since launching the patent pool campaign in January the Student Stop AIDS Campaigners have already successfully encouraged several major pharmaceutical companies to join, including Viiv andGilead. Campaigners stepped up their pressure on Johnson and Johnson in March, with more than 100 people staging a “pool party” protest outside Johnson and Johnson offices and aroundLondon.

 

They also used social media to challenge the company to take action, using Facebook and Twitter to get the message across and urge the company to take action. As well as signing the action cards thousands of people went online to put their name to a petition to get Johnson and Johnson to join the patent pool.

 

Lotti said: “There has been so much support for the campaign; we just hope that this time Johnson and Johnson listen and join the Medicine Patent Pool.”

 

Johnson and Johnson are due to announce their decision on 19 December at a Medicine Patent Pool meeting.

 

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Clegg sets sights on AIDS free world as Global Fund stops new grants

Deputy Prime Minister, Nick Clegg, used his World AIDS Day message to champion the advances the UK has helped to deliver in the global effort to tackle HIV which mean we can now set our sights on bringing an end to AIDS. But the consequences of a cash crisis at the Global Fund are dominating activists’ thoughts on December 1st. Continue reading

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Global Fund forced to slam the breaks on AIDS response

Last week the Global Fund to Fight AIDS, TB and Malaria was forced to take the unprecedented and potentially devastating decision to cancel all new programming until 2014 due to a severe lack of funds. Continue reading

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A history of World AIDS Day

Every year on the 1st of December millions of people from around the globe come together to spread the word about the HIV/AIDS pandemic, remember those who have died as a result of the virus and to show solidarity for those living with HIV.

In the UK in particular, there can be an attitude towards the pandemic as something that has been dealt with. Although amazing progress has been made in tackling the virus, 33.4 million people are currently living with the virus, 9,000 of who live in the UK. World AIDS Day is an opportunity to remind everybody that HIV/AIDS response is of utmost importance and put pressure on governments and pharmaceutical companies to commit to confront the pandemic.

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Two speakers living with HIV. One opportunity to hear their stories.

On the 27th October, a grey drizzly evening, 67 eager listeners crowded into a slightly-too-small room to see the Student Stop AIDS National Speaker Tour visit The School of Oriental and African Studies. Students, lecturers, development workers and parents sat (and stood), captivated by this year’s speakers, Viktor and Lea and the experiences they shared with us.

Hilarious but sometimes heart-breaking, Lea, from Bedford, took us through the life she has led, as a woman, as a mother and as a person living with HIV. It was refreshing to have a speaker who was evidently naturally witty and was able to cast a positive light on HIV/AIDS and the incredible treatment that is available for the virus. When asked “How have you found approaching relationships since you received your HIV positive status?” she replied “To be honest, the men come to me.” Viktor, from Nigeria, explained how stigma and discrimination surrounding HIV/AIDS, especially for men who have sex with men and other vulnerable groups, can be devastating.

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Hillary Clinton speech

Many of you reading this will have seen Hillary Clinton deliver an inspirational speech this week at the National Institute of Health in Washington DC. Calling for an ‘AIDS Free Generation’, the Secretary of State stressed the importance of continuing the hard work that has allowed the HIV/AIDS response the incredible success achieved over the last decade.

She noted that “the past 30 years has been a remarkable journey, but there’s still a long, hard road ahead of us”. At the Stop AIDS Campaign we are all too aware of the critical moment we have reached in the response and the significance of pushing for maintaining investment, both financially and politically, in the battle against HIV/AIDS. It’s fantastic to have someone in such a far-reaching position that is clearly on the same page.

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30 years of AIDS, 10 years of the Campaign

09-STOP-AIDS-7391Los Angeles, 15th June 1981. 5 young, previously healthy men were reported with a pneumocystis pneumonia, a type of pneumonia only prevalent where immune systems have totally collapsed. The first recorded cases of HIV/AIDS were the beginning of a flood of confusion and fear carried by the complete incomprehension of how the virus was transmitted or how to treat it.

30 years later and HIV is no longer a death sentence. We have incredible treatments which prolong the life expectancy of those with AIDS and enable them to live normal and healthy lives. We understand what increases the spread of HIV infections and how to stop mother to child transmission in order counteract HIV in new-borns.

Since the creation of the Stop AIDS Campaign ten years ago we have been privileged to watch, and be a part of, some amazing advances in the HIV/AIDS response: The creation of the Global Fund for AIDS, TB and Malaria in 2002 and subsequent 6.5 million lives saved by AIDS treatment provided by them. The recent conception of the Medicines Patent Pool and the rise in access to HIV/AIDS drugs that this will provide.

With all these incredible improvements it is possible to slip into dangerous territory. Now is not the time to sit back and consider the high mortality rate of HIV/AIDS a thing of the 80’s, distinct from humanity today. Even though the rate of new HIV infections declined by 25% from 2001 to 2009, there were still 2.6 million new cases reported in 2010 and 9 million people still can’t access to the essential drugs they need to live.

The HIV/AIDS pandemic is gradually slipping off the political agenda and financial support is becoming harder to recruit. We need to fight more than ever for those 9 million people living with HIV who can’t get the medicines they need, we need to make it clear that the current response to the HIV/AIDS pandemic just isn’t good enough.

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